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Our Mission

To create a better tomorrow for ourselves and our children with Moebius Syndrome through, awareness, education, online and in person events.

Upcoming Events

Our Stories

Megan

Megan

Loriana

Loriana

Molly

Molly

Noah

Noah

Matthew

Matthew

Matt

Matt

Kaiya

Kaiya

Mickey

Mickey

Nath

Nath

Testimonials

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“The MFOMS website is a great place to get started, not only in learning about Moebius, but also in learning more about the people who have it and actively becoming part of the community. As a person with Moebius Syndrome, I found it rewarding to be able to pull up pictures of other individuals around the globe who have the same disability as I have, because it instantly made me feel not so alone in my daily struggles. I also believe that the site is very professional in that it allows all viewers to provide active feedback, create new resources and continue to spread awareness for this rare illness.”

– Jon Fisher, Aurora Col, Adult with Moebius Syndrome 

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