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Founded in 2009, The Many Faces of Moebius Syndrome is the largest all volunteer Moebius Syndrome organization in the world. Prior to the popularity of social media, our founder Tim Smith, Gavin Fouche, Donnie Downs, and a few others pioneered the internet and brought the online global Moebius Syndrome community together one family at a time. We still maintain the largest Facebook page and group pages in the community.


In 2009 we started collecting personal stories from the global Moebius Syndrome community and now house the world's largest selection.


On January 24, 2011, Many Faces of Moebius Syndrome founded Moebius Syndrome Awareness Day which has grown to become a Global Day of Celebration held on January 24th of each year. 


The mission of the Many Faces of Moebius Syndrome is to create a better tomorrow for ourselves and our children living with Moebius Syndrome through education and awareness. 


We hope you’ll explore our websites and learn all about our amazing global community. Please feel free to email us at with any questions or suggestions.


If you would like to meet one of the Many Faces of Moebius Syndrome, go look in the mirror. Now that you have learned a little about us you are one of us. Welcome to our family and our community.

Meet Our Team
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